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Friday, July 31, 2009

You never know what you've got 'til...

IT'S ALL CLEAN! These two baskets represent the only 2 loads left to wash in our household.


Who needs to go shopping? FYI to all relatives - my children have enough to wear! They will not be naked this fall if they don't receive a single new clothing item. WOW! Did I just type that? It's finally true! YAY!

In fact, I wonder which (insert your favorite hand-me-down) store all this is going to end up at?


I'd make it a Trifecta Day** but then I'd have to strip all the beds and rewash our pajamas because none of us took a shower or got dressed today. But, hey, everything else is done! Maybe tomorrow - you're only a day two loads away.

**Trifecta Day! It means that when the kids (we all) go to bed tonight they will have (1) clean sheets on the bed and (2) clean jammies on their (3) clean bodies. This is a definition I got from my friend Pamm's blog - who says her sister coined the term. Isn't the concept simply delightful?

Note: My two-week search for the upstairs bedroom remote control has begun a MAJOR PURGING in our household. This is the first of a series of posts regarding our household PURGE. I just hope the remote shows up again SOON because it wasn't where I thought I would find it after I emptied the entire room out. I'm not going to tell you which room it was though. I don't want to embarrass my daughter.

Thursday, July 30, 2009

My Granny is Home!

Joan Brown Griffin, 76, passed from the arms of a loving family to the arms of her Loving Savior who will care for her for eternity at 8:56am on Thursday, July 30, 2009. Joan was the youngest of 8 children born to Justin and Maude (Devine) Williams on May 19, 1933, in Howard County. On January 10, 1960, she married Fred Brown, who preceded her in death.

Joan was employed at Delco Electronics, where she met Fred Brown. They worked side by side for many of her 30 years and were able to retire on the dame day. Her marriage to Fred Brown fulfilled her lifelong dream of being a wife and mother. They shared three daughters.

Joan gave her heart to the Lord and was a faithful servant throughout her life. She was a member of the Light and Life Free Methodist Church in Lakeland, Florida. Over the years, Joan and Fred spent many winters in Florida enjoying their days with best friends Merle and Joyce Griffin. Following the deaths of their spouses, Joan and Merle Griffin married on April 5, 2003. Merle also preceded her in death.

Joan spent her life as a caregiver, hosting family and friends, praying and sending cards to those who needed the support of a prayer warrior, and taking care of Fred Brown who suffered from an extended illness at the end of his life. Joan’s mission in life was to be a servant and to take care of others. My Granny will be greatly missed and her life joyously celebrated.


Tuesday, July 28, 2009

Rough week...

We started the weekend getting ready for Megan's sleep study knowing that we may not see my Granny ever again. The four of us went to see her. Megan waved to Granny. It was a very touching moment.

Then, we packed our van and went to Indianapolis for the sleep study. Megan was still fussing quite a bit. We gave her some extra pain medication for the trip so that it would not be unbearable. We checked into our hotel and got ready for her appointment. We had to pack all of her medications, breathing treatments, diapering supplies, etc. (You would think we have about 5 kids if you saw how full our van was.)

I took Megan to the sleep study. I took pictures of her wearing her gear, the mom bed, etc. I was going to write this great post about sleep studies and what you go through during the event. It looked for a while that Megan was going to go to sleep. But, she got agitated. And, more agitated. Annnnd, MORE AGITATED. She NEVER went to sleep. When the time was over in the morning, I was frustrated. I don't want Megan to feel like we are asking too much of her. I have watched my Granny say "enough is enough" most recently.

My Grandpa Brown (Granny's husband) was a 30+ year kidney transplant survivor. He lived every day of his life remembering the gift that he was given, not only from Christ but his brother as well. He asked my parents to get married a month sooner in 1972 because he did not know if he would survive. Not only did I enjoy a wonderful relationship with him and granny, I have pictures of them holding both of my children. He knew what a gift just being able to live every day was. I want my family, and especially Megan, to feel that way too. I wasn't supposed to know my Grandpa. But, God granted us more time to know him. He believed in fighting for each moment to improve life until there were no moments left.

I am torn. While I know that Megan's condition is eventually terminal, I want her to view each day as a gift and not too much to ask of her. I don't want her to think that living is just too hard. It's a fine balance, and I am having a really rough time with my feelings this week.

A couple weeks ago, someone asked me how we deal with Megan's hospitalizations and knowing her physical limitation looming ahead of us every time. I told them, "we prepare for the worst, and then hope for the best." I didn't know how else to describe what we go through.

A few weeks ago I found a message someone left on my post regarding Megan's diagnosis. This statement has stuck with me. It says what I was feeling and what I want to continue living. "First, you have to do what you have to do to prepare for death, you pursue health as well as you can without letting it take over your life, and then you live as though you are going to live." This is so hard. And, it is hitting me hard as I say my earthly goodbye to my Granny any moment.

Friday, July 24, 2009

I don't know...

...why my daughter has been so uncomfortable the last two days and needing more doses of her pain medication.

...what her sleep study tomorrow night will be like - if she will sleep at all with all the EEG wires, O2 and CO2 monitors, chest belt (kind of like when you're measuring contractions - only measures strength of inhale/exhale), and toe probes.

...what type of information we will find out Sunday morning about the results or if we will have to wait until her pulmonologist's appointment on August 7th.

...if I will even want to know when they tell us how she is doing.

...if my grandmother will still be here when we return from Indianapolis Sunday evening, or

...if we all just said goodbye to her for the last time.

But, I do know that they are both ready to meet the Lord who loves and made them however soon or far into the future it may be.

TGIF...

It's the last day of the work week -OK, I'm on the job 24/7- but I have only one appointment scheduled at 4pm today, I slept in, and I got some new anti-coughing medicine yesterday. I haven't had a coughing fit since I got it. Fingers crossed - my coughing days could actually be limited?

This is what the drug information site says about my condition. "Chronic dry cough can be annoying, and even painful. In some cases continuous non-productive cough has led to bruising of chest muscles and separation of ribs. The slightest activities will trigger coughing spells, including talking, eating, sitting up, exposure to cold air and dust, and laughing."

Yes, all of this is true. I have been taking narcotic pain relievers to help with this for the last month and was almost out. So, I called my doctor Thursday and said, "I am almost out of medicine, I am still coughing, and I can't wait until my appointment on the 31st." They got me in that day.

In addition to another round of steroids, a fourth bottle of the best cough syrup known to medicine, this new "perle" I got "relieves cough by acting directly on the lungs and the breathing by numbing the throat and lungs, making the cough reflex less active. It may also act on the cough center in the brain. It is a non-opioid, non-narcotic which, if taken as directed, should not cause drowsiness."

My doctor gave me a thirty day supply of this medicine. Hopefully, within another 30 days I will no longer be coughing.

Wednesday, July 22, 2009

The Art of Living

I have invited my Mom to share a part of her life that has been very difficult and yet rewarding at the same time. She is in the midst of honoring her mother's ultimate wishes, which has proven to be quite a task in these last few months, weeks, and finally days. Please pray for my mother and grandmother as my grandmother awaits her Heavenly invitation and my mother enjoys the final moments of their relationship here on earth. These are my mom's reflections:

Over the past nine days, I have been sitting at the bedside of my mother who is living the final days of her life. As I watch and pray, several things have stood out to me.

Developing and maintaining a relationship with God our Creator, Jesus our Savior and Lord, and the Holy Spirit our constant guide and helper, is the most important relationship we can cultivate.

There is no substitute for a team of loving, caring people at life’s end. Whether they are close family members or health care workers, tenderness and a willingness to tend to your physical, emotional, and spiritual needs cannot be overrated.

Time appears to little children as something that takes “forever” to tick by. As children turn into adults, time begins to pass very quickly. As people approach midlife, time flies by so quickly it appears that the “things” we believe we must accomplish may not come to fruition. Finally, at life’s end, time appears to stand still. It becomes our enemy because we so want to celebrate the beginning of new life in heaven with Jesus and our loved ones who have gone on before us.

All people need other people. There is really no such thing as a “loner.” God made us to serve and support one another. The love, care, and prayers of others is of utmost importance during difficult times. The relationships we cultivate and the people we lovingly serve throughout our lives become the legacy we leave behind.

Nothing takes the place of heart-felt laughter during trying times in life. It is so important not to take oneself or those around us too seriously. A guffaw coming from deep in the belly is very healing to a hurting heart.

We come into and go out of the world with no earthly treasures. All material possessions that we store up over our lifetime have no meaning or worth and the end of our lives. Those things we have held so dearly are not necessarily held so closely to those we are leaving behind. In fact, those stored up possessions can become quite a nuisance to family and friends.

The direction the toilet paper is placed on the roller, putting the cap on the toothpaste, and the manner in which the towels and washcloths are folded really doesn’t matter. Allowing the small things to frustrate us steals away our joy. Listening to the birds early in the morning, feeling the soft breeze blow across our faces, noticing the ladybug on the rosebush, and stealing a long look at the face of a sleeping baby brings peace, comfort, and joy to our souls.

Being able to remember these simple thoughts when life once again speeds up is my personal challenge. I so want to leave a legacy of love and care for others. This, for me, is the act of living a successful life.

Monday, July 20, 2009

Not Me! My child! Monday

Ok! So, we've established that we as parents are not perfect and have celebrated that fact thus far. However, today's special edition of Not Me! Monday is celebrating the fact that our children are not perfect either, no matter how cute we dress them or how well they seem to behave in public. Click on the banner below to read hundreds of other mom's stories about what their children have not done.



I have not told my child so many times which drawer to put her clothes into (and not the floor) that she did this:


"Underwear" and...


"Shirts."
Just in case you were wondering, yes they were labeled correctly on my dresser.

It is also no secret that in our household we love candy. Yes, it rubs off on our kids too. Just this morning I sent my dear husband to the store to refill a prescription (and redeem the $20 coupon we got for being frequent flyer pharmacy customers before it expires on us) and pick up some gummies (I love the bulk section too!). They got back from the store and my dear daughter did not say "Here's your bag, Mommy. I got one too and so did Daddy. Now, none of us have to share. Isn't that great?"

See what I did not do? I did not teach her that if you don't want to share yours, all you have to do is make sure your child has one of their own too! WOW! Didn't realize it was that obvious until today.

Do you have a story to share about how perfect your children are not? Leave it in a comment. You don't have to identify yourself and we can all have a ROFL Monday experience. (By the way, for anyway doesn't know ROFL = Rolling On Floor Laughing). Don't we all deserve that kind of Monday?