Megan and I.
Ken and the girls.
Our family of four.
Christians Should Read the Bible
1 year ago
Thursday, October 1, 2009
Family of Four...still
We made it through the night as a family of four.
Megan and I.
Ken and the girls.
Our family of four.
Megan and I.
Ken and the girls.
Our family of four.
Wednesday, September 30, 2009
Our Hospital Home
We have been living with Megan in the hospital since September 1, 2009. This is a peek into what it is like in our room. It is the first half of the "home base" that we have developed our lives around.
The first picture is of Megan sleeping soundly sporting her hospital's logo.
And now, Our front door - with the yellow isolation caution sign and Monica's artwork.
This is Megan's room as you enter the front door. You can see her lovely supplies in the front, the open door to our private restroom (YEA!), the window to the back of the room, and Ken sitting on his couch/bed.
If you turn to the immediate right from the door, you see my roll away bed and chair. There is a lovely cabinet above it for personal items.
Then, Megan's vest machine (breathing treatment) and bed are to the left of my area. She's my sleeping beauty.
This picture shows how these two spaces look together from the other side of Megan's bed - in front of the window. She's still sleeping. (Also pictured - the trash can and the cooling blanket machine for when Megan has a fever)
Megan's IV and feeding machines are to the left of her bed. The cabinet above the couch area in front of the window is also pictured here.
Ken sleeps on the couch at night - away from me on the other side of Megan - kind of like we're in an old TV show, right? He's reading my blog.
The cabinet for Megan's clothing and our snacks is along the wall at the end of the couch right next to the bathroom.
Then, that brings you back to the medical supplies table in front of the main entrance to our new home.
And, just for reading this far, I have inserted this picture of Megan during a few of her waking moments this evening.
It is our joy to live anywhere as long as we can be together.
The first picture is of Megan sleeping soundly sporting her hospital's logo.
And now, Our front door - with the yellow isolation caution sign and Monica's artwork.
This is Megan's room as you enter the front door. You can see her lovely supplies in the front, the open door to our private restroom (YEA!), the window to the back of the room, and Ken sitting on his couch/bed.
If you turn to the immediate right from the door, you see my roll away bed and chair. There is a lovely cabinet above it for personal items.
Then, Megan's vest machine (breathing treatment) and bed are to the left of my area. She's my sleeping beauty.
This picture shows how these two spaces look together from the other side of Megan's bed - in front of the window. She's still sleeping. (Also pictured - the trash can and the cooling blanket machine for when Megan has a fever)
Megan's IV and feeding machines are to the left of her bed. The cabinet above the couch area in front of the window is also pictured here.
Ken sleeps on the couch at night - away from me on the other side of Megan - kind of like we're in an old TV show, right? He's reading my blog.
The cabinet for Megan's clothing and our snacks is along the wall at the end of the couch right next to the bathroom.
Then, that brings you back to the medical supplies table in front of the main entrance to our new home.
And, just for reading this far, I have inserted this picture of Megan during a few of her waking moments this evening.
It is our joy to live anywhere as long as we can be together.
Monday, September 28, 2009
Weekend Recap
Saturday
- We all slept in. It was great to sleep.
- Family visits - thanks for bringing Diet Coke and snacks!
- Nurses brought Ken a birthday card, cake, and dinner coupons!
- We went to a restaurant to have Ken's birthday dinner and my sister volunteered to stay with Megan so I wouldn't worry (Thanks DD).
- Megan's fever re-appeared. She was more restless.
- Ken and I woke early at Megan's bedside.
- I visited the Indy Emergency Room regarding my coughing issues - again!
- We ate restaurant leftovers for lunch - YUM!
- Filled my new prescriptions at Meijer and bought some food for this week - You just can't eat cafeteria or McDonald's all the time.
- Megan's fever kept showing itself.
- Ken stayed with Megan and I went to RMH with Monica at dinner time. She still couldn't go to sleep early.
- Monica and I woke late and rushed to the hospital for school this morning.
- Megan was sleeping when I got to the hospital. She is also still sleeping as I type this.
- Monica was quiet today and we watched cartoons and wrote in her journal for her counselor while Megan slept.
- I stayed in my jammies all day long.
- Megan's fever is still not gone.
- Ken is baking DiGiorno pizzas as I type this and I actually feel like eating - How cool is that?
Friday, September 25, 2009
Thursday, September 24, 2009
Writer's block
I don't know what to say anymore.
We are still out of our "element" - whatever it was anyway.
I don't want to talk on the phone.
I don't want the phone to ring.
I don't want to be asked how I am, how Megan is, how anyone is.
This sucks and we all feel it. I have run out of nice ways to say it.
The longer we are here, the more it plays with your mind - with all of our minds.
We have had kids get better, be discharged, come back, and pass away in front of our eyes and we are still here.
But part of me does not want to speed things up because then I won't be able look into my daughter's eyes anymore and I'll have to try to figure out what to do for the rest of my life.
If I could be any animal in the world, I would be a turtle. Not because its my favorite animal, but because they have a place to withdraw to and shut everything else out.
Tomorrow I may feel different. I hope so. But today, this is me.
We are still out of our "element" - whatever it was anyway.
I don't want to talk on the phone.
I don't want the phone to ring.
I don't want to be asked how I am, how Megan is, how anyone is.
This sucks and we all feel it. I have run out of nice ways to say it.
The longer we are here, the more it plays with your mind - with all of our minds.
We have had kids get better, be discharged, come back, and pass away in front of our eyes and we are still here.
But part of me does not want to speed things up because then I won't be able look into my daughter's eyes anymore and I'll have to try to figure out what to do for the rest of my life.
If I could be any animal in the world, I would be a turtle. Not because its my favorite animal, but because they have a place to withdraw to and shut everything else out.
Tomorrow I may feel different. I hope so. But today, this is me.
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