In the last couple of weeks the doctors (seems like every doctor in this hospital) told us Megan's respiratory system is failing. We had to see, admit, and say out loud it was so. It seemed that they just wanted us to go home and finish on our own.
My mom has written these notes regarding our experience today which included tears before, during, and after - and not just by the family members present.
"Quick bullet points from the meeting:
-Meg's time with us is very limited...weeks, rather than months.
-Because Meg requires an excessive amount of care, she will stay in Indy until or unless her parents decide to take her home.
-Ken and Lori feel very comfortable spending quality parenting time with Meg in Indy rather than having to be her medical caretakers at home.
- Hospice will take on psycho-social support for the family until or unless other support is needed.
-Child psychologists are here and will be supporting Monica while the family is in Indy.
-Our family has been labeled "fully functional!" We will take this label with us for as long as we live...we ARE normal people...going through very difficult times...and in need of all your good thoughts and prayer support."
I, myself, am still deciding how I feel about the whole situation. Maybe it's just the pessimist in me that can't believe that this really did take place. I want to believe it when I see it and that these same conversations don't creep back into discussion before we are ready, if we ever are.
We love you all and thank you again. We so appreciate you!
7 comments:
I've been there. :( You are in my thoughts.
Thank you for updating us about the meeting. I'm so glad you got what you wanted and are staying in Indy. You had many, many people praying about this meeting. Love you, Lori.
Praise the Lord for His mercies today. There is so much I would like to say but the tears are coming too hard.
I am so glad to hear that you had favor in this situation. You were in my thoughts and prayers constantly today. It's so nice to hear that you will get to focus on just loving on Megan and not have to stess about her medical needs in an already stressful time. Again, if there is anything Josh and I can do please don't hesitate to ask.
Much Love,
Kristine
Lori and family, I am so glad that you get to stay where you are and be able to just love on your precious daughter rather than stress about her needs. I am also thankful that you will all be recveiving counseling. Still praying for you and your family
amy
I am glad to hear that you are able to stay in Indy. You guys have been in my thoughts and prayers and I will continue to pray for you. If there is anything that you guys need taken care of here while you are gone, please don't hesitate to ask.
Rachael
Thank you for sharing. I can't imagine how difficult this journey must be. You are on our hearts and in our prayers. Praying you feel the arms of the Father around you tonight.
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