Meeting Notes

I didn't want the meeting. I didn't want to go to the meeting. It was a rough morning before the meeting.  I appreciated everyone's thoughts and prayers for us so much.

In the last couple of weeks the doctors (seems like every doctor in this hospital) told us Megan's respiratory system is failing. We had to see, admit, and say out loud it was so. It seemed that they just wanted us to go home and finish on our own.

My mom has written these notes regarding our experience today which included tears before, during, and after - and not just by the family members present.

"Quick bullet points from the meeting:
-Meg's time with us is very limited...weeks, rather than months.
-Because Meg requires an excessive amount of care, she will stay in Indy until or unless her parents decide to take her home.
-Ken and Lori feel very comfortable spending quality parenting time with Meg in Indy rather than having to be her medical caretakers at home.
- Hospice will take on psycho-social support for the family until or unless other support is needed.
-Child psychologists are here and will be supporting Monica while the family is in Indy.
-Our family has been labeled "fully functional!" We will take this label with us for as long as we live...we ARE normal people...going through very difficult times...and in need of all your good thoughts and prayer support."

 I, myself, am still deciding how I feel about the whole situation. Maybe it's just the pessimist in me that can't believe that this really did take place. I want to believe it when I see it and that these same conversations don't creep back into discussion before we are ready, if we ever are.

We love you all and thank you again. We so appreciate you!