tag:blogger.com,1999:blog-6641381067306044119.post8155612902999841625..comments2023-08-24T08:53:04.708-04:00Comments on Our Special Needs Life: All About GJ-tubesLorihttp://www.blogger.com/profile/08187892007539728010noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-6641381067306044119.post-82781169877345731602017-01-07T11:56:26.878-05:002017-01-07T11:56:26.878-05:00I am curious about switching back to just a g tube...I am curious about switching back to just a g tube from the gj? My son was given the gj due to aspiration but we then discovered he had a cleft larynx causing the aspiration. I'm wondering if it's possible or hard to go back to just the g tube?Anonymoushttps://www.blogger.com/profile/05732118180550018015noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-32618539428873333292014-04-01T16:20:56.499-04:002014-04-01T16:20:56.499-04:00Thank you so much for the info. I had asked a few ...Thank you so much for the info. I had asked a few nurses about a low profile gj tube. Half said yes there was one and the others said there was not. We just switched from a low profile mickey gtube to a gj tube with the long tube attached. I would like to see if they can use the low profile gj tube as this one we do not like. Thank you for being a beacon of hope out there for parents who feel lost. Leighnoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-45208769869754056482013-08-14T21:47:23.685-04:002013-08-14T21:47:23.685-04:00where can our doctor get one we have been told the...where can our doctor get one we have been told there is a national shortage my grandson needs one asap he is being feed through a pic line in his arm<br />ocmarge@aol.commargenoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-59191695909491677502012-11-24T10:35:30.675-05:002012-11-24T10:35:30.675-05:00Very good but still have questions. Our J-tube is...Very good but still have questions. Our J-tube is getting clogged regularly even though we flush it once per hour, and seems to "burst" and need to be replaced about every three weeks. We use the second type listed above. We have Sodium Bicarb & Creon which we put down and works "sometimes." It seems the G-tube is inside the J tube (I used to think it was reversed). I can't understand how the G-tube ends in the stomach if it is "inside" the longer J-tube which continues to the colon?Loisnoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-87505480433604363262012-10-03T21:21:59.152-04:002012-10-03T21:21:59.152-04:00Hi,
This is Lori from the blog "Our Special ...Hi,<br /><br />This is Lori from the blog "Our Special Needs Life" (Megan's Mom). Our goal was to try to get our daughter back to G-tube feedings after using the G-J tube but were never successful. However, it is more due to the fact that she had a degenerative disease. I was never told that that goal wasn't possible. We were told in the beginning that it could be a temporary option to give the stomach a rest and then try to increase feedings to the stomach as it allowed. You doctor can let you know what their feeling is on this as well. I wish you luck and will pray for your family as you make this decision.<br /><br />LoriSpecNeedsLifenoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-83635928770423694062012-10-03T21:21:58.142-04:002012-10-03T21:21:58.142-04:00What happens to the stomach when you try to go bac...What happens to the stomach when you try to go back to the G tube if there has not been any food going into the stomach for a long period of time? I ask this because we hope that someday our daugher will be an oral feeder. We are trying to decide if we should try the GJ tube, hoping that it will cure her vomiting. Mandyle1475noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-78097668238067847882012-10-03T21:21:53.163-04:002012-10-03T21:21:53.163-04:00Thanks for nice dscription, I just got G J tube c...Thanks for nice dscription, I just got G J tube couple days ago for my 6 years old daughter, so far she is doing ok with this. But Dr told me I have to feed her 70 ml/hour. Its little bit dificult because almost whole day and night i have to feed her.anyway could I get your e mail address then we can share some new issues ( If you dont mind). Thanks again. Charpogalnoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-35522173182388962622012-10-03T21:21:27.135-04:002012-10-03T21:21:27.135-04:00im so glad the gj tube worked for u i'm still ...im so glad the gj tube worked for u i'm still thinking about placing my dougther one or if i just leave the g tube...liliananoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-81097002485995306002012-10-03T21:21:18.089-04:002012-10-03T21:21:18.089-04:00my daughter just got a G/J tube this morning, she ...my daughter just got a G/J tube this morning, she has pancreatitis from spinal fusion, I was looking for info to send to my blog and fb..this post is exactly what I was looking for. very good info..I hope it's ok if I send others to this page from my blog? my blog is http://joansblessings.blogspot.com/ <br />joan & hannah grace<br /> this post came searching on swagbucks, thanks for writing itjoan joneshttp://joansblessings.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-44244605483991128742012-10-03T21:21:12.084-04:002012-10-03T21:21:12.084-04:00My daughter has had a g tube for 6 months but the ...My daughter has had a g tube for 6 months but the did not do the fundaplication with it. She is very active but we just found out 2 weeks ago that she has severe epilepsy and the GI doc wants to do a GJ tube because she aspirates due to reflux....I've been told once they go to the GJ tube, its hard to ever take them off because the stomach has been bipassed for so long and "forgets" how to properly function as does the small intestine after its been "fed" for so long. Personally, I'm against it in my daughters case because she is so active. She can't handle bolus feedings now because they come out of her mouth as they go into her stomach but I just feel that I would be sentencing her to a life tied to tubes and to the backpack...is what I'm being told by nurses true or no???Jenny_nicole_s1979noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-3987956253793103662012-10-03T21:20:56.160-04:002012-10-03T21:20:56.160-04:00Thanks so much for your blog. I have one child wh...Thanks so much for your blog. I have one child who was on a g-tube 20 years ago and now eats many small meals each day. Now another child just got a g/j tube. I am so happy as he hated eating and is 22 yrs old. I have problems keeping the tube from getting blocked. Any ideas??Poohprincessnoreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-90304570152882040252010-08-23T18:52:35.444-04:002010-08-23T18:52:35.444-04:00Thank you SO MUCH for this post! My 9 month old ha...Thank you SO MUCH for this post! My 9 month old had a G tube placed 3 weeks ago & we're exploring the possibility of a GJ. I've been looking for some useful information about GJ tubes (you know, from a Mom's perspective, not the standard textbook information) and this helped a lot. I haven't had a chance to read anything else about your sweet daughter but as a mom of a baby with medical issues of yet-to-be-determined causes, I really appreciate other moms who are willing to put their stories out there, even when they include the loss of a beautiful girl like your Megan. Thanks again!Brandishttps://www.blogger.com/profile/16012190454446419189noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-26950603452186414222010-02-07T20:06:48.341-05:002010-02-07T20:06:48.341-05:00HI MY NAME IS DERRINA MY CHILD NYLAH IS GOIN TO GE...HI MY NAME IS DERRINA MY CHILD NYLAH IS GOIN TO GET THE GJ TUBE DONE TOMORROW I'M WORRIED ABOUT IT ALL i really don't know what it is and how it works i know the doctor are goin to show us how it works but i just won't to get some support on the matter you can email at ohiotoniomonea@yahoo.com<br />thank hope to hear from you soonqueenie queenhttps://www.blogger.com/profile/12724334171742880739noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-58369690670711209542010-02-07T20:05:49.396-05:002010-02-07T20:05:49.396-05:00just wont to get more info on the gj tubejust wont to get more info on the gj tubequeenie queenhttps://www.blogger.com/profile/12724334171742880739noreply@blogger.comtag:blogger.com,1999:blog-6641381067306044119.post-81324070634948541462009-10-22T09:21:18.638-04:002009-10-22T09:21:18.638-04:00Thank you so much for this post! My son just had ...Thank you so much for this post! My son just had his g-j tube placed and can for ward this post to family members who have questions. :)<br /><br />Your daughters are beautiful!Lisahttps://www.blogger.com/profile/11157074679887885490noreply@blogger.com